A Beginners Guide to RA: How to Be a Self Advocate

“In communities of people who have chronic illnesses like rheumatoid arthritis, you often hear advice about becoming a good advocate for yourself — how it is an essential part of navigating the health care system and contributes to living well with chronic health issues. Self advocacy won’t cure your RA or reduce your pain levels, but it will help you to represent your own interests within the health care system, ensuring that the decisions made are best for you. When you know what’s happening is the best option for you, you feel confident and more in control of your life and that can help keep your stress levels down. But how do you advocate for yourself?”

Read the full post at MyRACentral.com.

Thank you Lene Andersen for writing this wonderfully informative post. I have no doubt that many people who read it will feel more empowered when it comes to advocating their own RA healthcare treatment.

Lene writes at her personal blog, The Seated View.

Arthritis Foundation’s Camp Cruz For Children Living With Juvenile Arthritis

Camp Cruz Offers Children with Arthritis an Enjoyable Outdoor Experience

Arthritis Foundation Camp Cruz“Only a decade ago, it was not uncommon to see children with juvenile rheumatoid arthritis use wheelchairs and be in dire need of surgery or joint replacement.

But thanks to recent advancements in medicine, many of those afflicted with the disease are receiving the treatments they need to live healthy, productive lives.

This week at the Arthritis Foundation’s Camp Cruz, a five-day sleepover camp tucked in the ponderosa pines off Senator Highway near Prescott, evidence of these breakthroughs was palpable…”

Read the full story from The Daily Courier…

What a wonderful idea! As an avid outdoor person living with rheumatoid arthritis, I really appreciate the beauty of getting these young kids living with juvenile arthritis together in a natural environment.

(Hat tip to Arthritis Foundation for sharing this on their Facebook page.)

Under Our Skin



In theaters June 19th, 2009.

A dramatic and frightening expose about how our corrupt medical system is failing to address one of the most serious epidemics of our times.

A gripping tale of microbes, medicine and money, this eye-opening film investigates the untold story of Lyme disease, an emerging epidemic larger than AIDS. Each year thousands go undiagnosed or misdiagnosed, told that their symptoms are “all in their head.” Following the stories of patients and physicians fighting the disease, the film brings into focus a haunting picture not only of our health care system and its inability to cope with a silent and growing terror, but also of a medical establishment all too willing to put profits ahead of patients.

Convince your local independent theater of the importance of running the film. Have interested theaters contact our distributor Ken Eisen of Shadow Distribution at 207-872-5111 or shadow@prexar.com for a week long run.

*** Updated to include YouTube trailer. ***

Juvenile Arthritis: The Ultimate Teen Guide

Juvenile Arthritis

Juvenile Arthritis: The Ultimate Teen Guide (It Happened to Me)
by Kelly Rouba

“A self-help guide for youth, Juvenile Arthritis: The Ultimate Teen Guide will also be useful to family members, friends, and caregivers of those suffering from the disease. Readers get an overview of juvenile arthritis from the point of view of teenagers and their parents, and there are discussions related to diagnosis, symptoms of the disease, its history, and various related conditions.”

Be sure to check out this new book that was published recently.

More information can be found on the author’s blog at: kellyrouba.blogspot.com.

Contact Your Members of Congress About Health Care Reform Today!

The following is an Arthritis Foundation Action Alert.

Health care reform now for people with arthritis!

Take Action!

Today, fellow advocates stormed Capitol Hill to let Congress know people with arthritis need health care reform.  To meet these advocates click here.
The Arthritis Foundation has heard from many of you about your challenges accessing and paying for health care. Your stories brought home the fact that there are 45 million Americans without insurance, millions who are underinsured, and the rising trend that paying for health care is contributing to upwards of half of all bankruptcies in the U.S.

Congress has been working on legislation to reform the health care system over this past year.  Starting this week, Congress is planning to discuss this legislation in committees and it will eventually reach the Senate and House floor.

It is very important that you tell your Members of Congress about the unique health care needs of people with arthritis.  If you are currently experiencing challenges accessing or paying for health care, please tell Congress your story.  If you don’t tell them about the problem, Congress can’t include a solution in the legislation.

Please read the Arthritis Foundation’s Health Care Reform Summary

Click “Take Action” to write your Members of Congress and let them know we need health care reform NOW!  Please feel free to use your own words in sending a message to Congress.

When you are finished telling Congress, don’t forget to share with us too. https://www.surveymonkey.com

Also, please visit a new section of our website with information and resources regarding accessing health care  and patient assistance programs.