Despite Lupus: How To Live Well With A Chronic Illness

Despite LupusDespite Lupus: How To Live Well With A Chronic Illness
by Sara Gorman

“Sara [Gorman] has written a gem of a book for lupus patients struggling with a new, frightening and unpredictable illness. Her advice is also applicable to all of us: lead a healthier, happier life. Discover the inner self and what is really important to you. Change is the cornerstone of life. Sometimes when we are feeling awful, we fear that “I will feel like this forever”. That feeling is understandable but completely false. Things always change. Knowing that we will not feel the same the next day or the next week is comforting. Our ability to change and put our happiness and the happiness of our loved ones as the core of our existence makes us happier and healthier people with our chronic disease, whatever that disease may be. Sara’s book helps us learn these and other truths to help us live with lupus and lead happier lives.”

More information can be found at the author’s blog

I haven’t read this book yet – it was just published this past week – but I look forward to doing so. One of the nice things about the whole umbrella of autoimmune illnesses is that, quite often but not always, if something does not directly address my own personal illness, I can just swap out some terms (i.e. rheumatoid arthritis, lupus, lyme disease) and it works just as well!

Hat tip to My Life Works Today! for posting about this book.


Access To Healthcare

Access to HealthcareNothing is more important than having access to the best healthcare possible, especially if you or one of your family members has arthritis or a related disease.

If you have insurance coverage, are on Medicare, or are uninsured or underinsured, you need to know all of your options for getting care and getting coverage.

More than 46 million Americans have arthritis or a related rheumatic disease, many of whom struggle to find accessible, affordable health care.

More information is available on the Arthritis Foundation’s Access to Healthcare web page.

I have received quite a few emails asking me if I had any information on co-payment, out of pocket assistance, and drug discounts – in addition to access to rheumatoid arthritis medications for people who are currently uninsured.

I didn’t have an answer before, but I just came across this great resource on the Arthritis Foundation website that includes all the links and phone numbers needed to find out the answers.

Hope this helps!


A Beginners Guide to RA: How to Be a Self Advocate

“In communities of people who have chronic illnesses like rheumatoid arthritis, you often hear advice about becoming a good advocate for yourself — how it is an essential part of navigating the health care system and contributes to living well with chronic health issues. Self advocacy won’t cure your RA or reduce your pain levels, but it will help you to represent your own interests within the health care system, ensuring that the decisions made are best for you. When you know what’s happening is the best option for you, you feel confident and more in control of your life and that can help keep your stress levels down. But how do you advocate for yourself?”

Read the full post at

Thank you Lene Andersen for writing this wonderfully informative post. I have no doubt that many people who read it will feel more empowered when it comes to advocating their own RA healthcare treatment.

Lene writes at her personal blog, The Seated View.

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Arthritis Foundation’s Camp Cruz For Children Living With Juvenile Arthritis

Camp Cruz Offers Children with Arthritis an Enjoyable Outdoor Experience

Arthritis Foundation Camp Cruz“Only a decade ago, it was not uncommon to see children with juvenile rheumatoid arthritis use wheelchairs and be in dire need of surgery or joint replacement.

But thanks to recent advancements in medicine, many of those afflicted with the disease are receiving the treatments they need to live healthy, productive lives.

This week at the Arthritis Foundation’s Camp Cruz, a five-day sleepover camp tucked in the ponderosa pines off Senator Highway near Prescott, evidence of these breakthroughs was palpable…”

Read the full story from The Daily Courier…

What a wonderful idea! As an avid outdoor person living with rheumatoid arthritis, I really appreciate the beauty of getting these young kids living with juvenile arthritis together in a natural environment.

(Hat tip to Arthritis Foundation for sharing this on their Facebook page.)


Under Our Skin


In theaters June 19th, 2009.

A dramatic and frightening expose about how our corrupt medical system is failing to address one of the most serious epidemics of our times.

A gripping tale of microbes, medicine and money, this eye-opening film investigates the untold story of Lyme disease, an emerging epidemic larger than AIDS. Each year thousands go undiagnosed or misdiagnosed, told that their symptoms are “all in their head.” Following the stories of patients and physicians fighting the disease, the film brings into focus a haunting picture not only of our health care system and its inability to cope with a silent and growing terror, but also of a medical establishment all too willing to put profits ahead of patients.

Convince your local independent theater of the importance of running the film. Have interested theaters contact our distributor Ken Eisen of Shadow Distribution at 207-872-5111 or for a week long run.

*** Updated to include YouTube trailer. ***