More Personal Stories Of RA

Another Alice: An Inspiring True Story of a Young Woman’s Battle to Overcome Rheumatoid Arthritis
Alice Peterson

Jodie’s Journey
Colin Thiele

Send Yourself Roses: Thoughts on My Life, Love, and Leading Roles
Kathleen Turner and Gloria Feldt

Many thanks to Jennifer for suggesting these additional books on personal stories of rheumatoid arthritis.

I have created a new page RA & The Arts where I will be keeping track of resources which combine rheumatoid arthritis and the world of art. This link is available on the top navigation bar.

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Survey: Partnership To Enhance Research Related To The Management Of Chronic Disease

Rheumatoid Arthritis Guy just completed this survey! If you are living with chronic disease or are the caregiver of someone living with chronic disease, please help by taking this survey. It only takes about ten minutes, and you can enter a raffle for a $100 Visa gift card.

Advocacy for Patients with Chronic Illness, Inc. and the University of Michigan Center for Managing Chronic Disease have been awarded a grant by the National Institutes of Health (NIH) to study the obstacles facing the chronically ill and caregivers, interventions that do and do not work to surmount those obstacles, and ways in which the work done by the NIH, including research and clinical trials, may be helpful to patients with chronic illnesses. With the help of twelve patients and caregivers, we have drafted a survey which is available online at:

http://chronicdisease.survey.sgizmo.com .

If you have a chronic illness such as Crohn’s disease, ulcerative colitis, rheumatoid arthritis, fibromyalgia, multiple sclerosis, immune deficiency, or other chronic illness or are a caregiver of someone with a chronic illness, are at least 18 years old, and would like to take the survey, please do so. If, for any reason, you are unable to take the survey online, or you would prefer to be interviewed by telephone, or if you have any questions at all about the research, please contact Jennifer Jaff at (860) 674-1370. She will answer any questions you may have, provide more details about the study and arrange for an interviewer to call you to schedule the telephone interview at a time convenient to you. Any services you or the person you care for may receive from Advocacy for Patients will not be affected by your participation or decision to not participate.

Thanks to Lisa at Brass and Ivory and Duncan at Duncan Cross for helping to spread the word about this survey.

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