“Disabled people do not all share a single experience, even of the same impairment; likewise, designers in the same discipline do not follow a single approach or hold the same values. Exciting new directions will arise from individual designers working with disabled individuals on particular briefs. This will produce different responses each time, complementary and even contradictory directions, but this richness is needed.” — Graham Pullin, Design Meets Disability
This film features young people discussing what it’s really like to have an ‘older person’s illness’ at such a young age and the impact that it has on their everyday lives.
The young people talk very openly and honestly about some very sensitive and difficult issues, including coping with treatments, hidden disability and their experience of being a long term patient.
At Arthritis Care, we believe that people with arthritis need much more than well-meaning sympathy. They, and their families and friends, need support, understanding, information and expertise, so that they can cope better and get the most out of life.
That’s exactly what our organisation does, through a wide range of services designed to improve life for everyone with arthritis.
If you are affected by arthritis we can support you through our helplines and self-management courses; our information and booklets; our local groups; and our campaigns to change attitudes and improve services.
People with arthritis are central to everything we do, and are involved at every level of the organisation. We need your support to represent people with arthritis, and to maintain and develop our services. You can beinvolved as a member, a donor, a subscriber or a volunteer. Your support is vital.
Arthritis Care works on behalf of over 700,000 people in Scotland who are affected by arthritis. It provides services and support for people with all types of arthritis, their families, and those who work with them.
More Information: http://www.arthritiscarescotland.org/
It’s been 22 years since Michael J. Fox was diagnosed with Parkinson’s disease, a debilitating illness that had put his career on hold. His return to television, including new NBC comedy “The Michael J. Fox Show,” has been an inspiration to those with the same diagnosis. NBC’s Willie Geist reports.
“I don’t look at myself as a leader. I do look at myself as part of the community. I’m a visible member of the community. If I can set the example for people and make them feel that you don’t have to shut it down. You don’t have to withdraw. It doesn’t have to be life shattering, life ending or life destroying or anything. Just be a new thing that pushes you to a new place.” — Michael J. Fox.
More Information: http://www.nbc.com/the-michael-j-fox-show/
by Jennifer Le Blanc
“This is the first post of a new blog series. The posts in this series will include my thoughts on a variety of subjects, all beginning with “The Art of.”
Today I want to talk about the Art of Living Well with a Chronic Condition. […]
Create or maintain a support system. When you are able, be there for others. When you need help, learn to ask for it, and accept it. Severe levels of chronic pain quickly cause a sense of isolation. That sense of being alone can be detrimental to your well-being. Reach out! […]
I hope something here helps you when you are struggling with your reality. Life still has a great deal to offer, and you are not alone!”
The Old Lady in my Bones
n my thirties, I was diagnosed with early Rheumatoid Arthritis. I developed this blog to share my experience living with this disease. I also want to create awareness that arthritis is not a disease just for the elderly. Young people are susceptible and can suffer just as much. It is a debilitating disease that destroys lives. It affects employment, personal relationships and can cause depression. Knowledge is power. The more you learn about your situation, you can live a fulfilling life despite your disease. Sometimes you must learn to let your old life die and create a new one, like a re-birth.
Read More: http://theoldladyinmybones.com/
Ankylosing Spondylitis like all chronic conditions becomes your life, but this doesn’t mean you life has to become your condition. This blog is a way of not only spreading awareness of the condition, but as a way of showing the world (and myself) the lengths we go to to manage our condition, and how we can enjoy doing so in the process.
Read More: http://endlesstrax.com/
This blog details the quest to finding gorgeous, stylish shoes minus the platform, the 6-8 inches and the pain and inevitable injury that comes with every inch. For all young women who stylishly live with a debilitating, disabling, painful illness. Here’s to us! And our beautifully adorned feet;)
Read More: http://farewellstiletto.blogspot.com/
Struggling with Rheumatoid Arthritis
This blog is dedicated to a journey I have been on for nearly the past 10 years. Some of the journey has been good, other times not so good. But all along, I have learned a lot, met a lot of friends and even laughed a little. Here is the story of my Struggle with Rheumatoid Arthritis.
Read More: http://strugglingwithrheumatoidarthritis.blogspot.com/
Life with Arthritis
We all want to believe in a better future but trying to be positive about the future isn’t easy when the present is so hard. The feelings of hopelessness, sadness and loneliness are so strong it’s hard to believe I will overcome them. I want to believe things will get better but I can’t. Struggling through depression the last few years has been difficult enough, but now I’m suffering with an actual physical illness that I’m finding really hard to cope with. I wish I was strong enough to deal with the daily struggles I am faced with, but having been depressed for about eight years now I haven’t the emotional strength or the spirit I need to help myself.
Read More: http://aisla78.blogspot.ie/
More resources and blogs: www.rheumatoidarthritisguy.com/links/