Men With RA

During the first three months of writing this blog, I received blog comments from three other guys who live with RA. During this past week alone, I received blog comments from another three guys who live with RA.

It’s so nice to continue to meet other men who are also living with rheumatoid arthritis!

For my original blog post on this topic please read XY With RA!

Jennie Garth Talks Daughter’s Rheumatoid Arthritis

Jennie Garth’s husband, Peter Facinelli, may be a worldwide box office star in “Twilight,” but at home he and Jennie were faced with devastating news after one of their daughters was diagnosed with rheumatoid arthritis.

Watch the video clip (

For more information on Still’s Disease, please visit the International Still’s Disease Foundation.

(Hat tip to Singlegal Withra for sharing this video!)

Biologics Battle In The News

A bitter pill: Price of biologic drugs often too high for poor, ill seniors who need them

“For people with serious diseases like cancer and arthritis, these drugs are often their last hope,” said Schumer, who plans another try when the bill hits the Senate floor. “To not price them fairly, at the behest of the brand-name drug industry, is outrageous.

Read full story (NY Daily News)

Consumer Groups Threaten To Withdraw Biologics Bill Support

In all frankness, we cannot be supportive of any generic biologics legislation that would be an empty promise to the Americans we represent and serve,” the letter said. The letter, signed by AARP, the Consumers Union, the Coalition for a Competitive Pharmaceutical Market and other groups, was sent to House Energy and Commerce Committee Chairman Rep. Henry Waxman, D.-Calif.

The letter, also signed by the Generic Pharmaceutical Association, urges Congress to “reject the fatally flawed” biologics legislation proposed by Rep. Anna Eshoo, D.-Calif., and criticizes biologics legislation passed in a Senate committee earlier this week. Eshoo wasn’t immediately available to comment.

Read full story (

For some background on the battle of the exclusivity period of biologics that is currently taking place in the U.S. Congress (thing are currently moving in favor of the Biotech and pharmaceutical industries), take a look at my post of last week: The Battle Over Biologics.

Within Our Reach: Finding A Cure For Rheumatoid Arthritis

Within Our Reach

The American College of Rheumatology Research & Education Foundation was established in 1985 as a 501 (c) 3 organization, with the mission to improve patients’ lives through support of research and training that advances the prevention, treatment and cure of rheumatic diseases.

  • On July 1, 2008, the REF awarded $10.5 million in awards and grants to almost 200 individuals and institutional grant recipients, making us the second largest funder of rheumatology research and training programs in the U.S.
  • Today, due in large part to the REF’s efforts, the number of fellows completing rheumatology training programs has increased by more than 50 percent.
  • On average, ninety cents out of every dollar donated to the REF goes directly to support programs designed to recruit, train and nurture the next generation of rheumatologists and rheumatology health professionals.
  • NRAS: Improving Awareness Of RA


    NRAS Calls For A Public Awareness Campaign To Improve Time To Diagnosis And Treatment

    The National Rheumatoid Arthritis Society (NRAS) has today called for a national campaign to improve awareness about Rheumatoid Arthritis so people can seek swift treatment and prevent long term joint damage and disability. This follows the publication of research by the National Audit Office (NAO) that has revealed a very worrying lack of awareness about RA among the public, health professionals and commissioners.

    (July 15, 2009)

    Full NRAS Press Release

    Rheumatoid Services Are “Failing”

    Tens of thousands of patients with rheumatoid arthritis (RA) are not being diagnosed or treated quickly enough, says a watchdog.

    The National Audit Office says over half a million people in England live with the disease, with 26,000 new cases a year – double the current estimate.

    But only a tenth are treated within three months of symptoms starting, as ideally they should be.

    (July 14, 2009)

    Full BBC News Article