The American College of Rheumatology Research & Education Foundation was established in 1985 as a 501 (c) 3 organization, with the mission to improve patients’ lives through support of research and training that advances the prevention, treatment and cure of rheumatic diseases.
- On July 1, 2008, the REF awarded $10.5 million in awards and grants to almost 200 individuals and institutional grant recipients, making us the second largest funder of rheumatology research and training programs in the U.S.
- Today, due in large part to the REF’s efforts, the number of fellows completing rheumatology training programs has increased by more than 50 percent.
On average, ninety cents out of every dollar donated to the REF goes directly to support programs designed to recruit, train and nurture the next generation of rheumatologists and rheumatology health professionals.
NRAS Calls For A Public Awareness Campaign To Improve Time To Diagnosis And Treatment
The National Rheumatoid Arthritis Society (NRAS) has today called for a national campaign to improve awareness about Rheumatoid Arthritis so people can seek swift treatment and prevent long term joint damage and disability. This follows the publication of research by the National Audit Office (NAO) that has revealed a very worrying lack of awareness about RA among the public, health professionals and commissioners.
(July 15, 2009)
Rheumatoid Services Are “Failing”
Tens of thousands of patients with rheumatoid arthritis (RA) are not being diagnosed or treated quickly enough, says a watchdog.
The National Audit Office says over half a million people in England live with the disease, with 26,000 new cases a year – double the current estimate.
But only a tenth are treated within three months of symptoms starting, as ideally they should be.
(July 14, 2009)
“Here is a great gift of wisdom and humour for anyone coping with actual aches and pains. Based on the author’s own experience as a hip-replacement patient, she provides funny insider advice about coping with the ordeals of surgery, a hospital stay, and at-home convalescence.
Highlights include: 10 little jobs you can give to anyone who innocently asks, “How can I help?”; dignified ways to cope with all the indignities of baring your body to strangers; great gifts to suggest when someone asks, “What can I bring you?”; and tips on dealing with visitors…and hospital food…and medical professionals. Far more entertaining than a potted plant! Read wonderfully by Kate Binchy.”
Arthritis: Maeve Binchy And Martina Cole Share Their Experiences
“Two best-selling novelists, Maeve Binchy and Martina Cole, suffer from arthritis but have refused to be downcast or to let it impede their work. Here they describe some of the prejudices they suffered and the cunning ways they devised to keep their condition secret. Both women, in different ways, have resolutely adapted to one of our most intractable, common and poorly-understood diseases.”
Thanks to Sunita (ClematisWaves) for sharing this article with me.
As I get some bed rest this afternoon (don’t worry -for the most part I am okay, but some of the pressure bearing joints in my toes decided to act up, so I decided to give them a rest) I spent some time working on my blog.
For a while I’ve wanted to add a ticker on my site, in order to include news links related to Rheumatoid Arthritis, Lupus, Lyme Disease, and Autoimmune Diseases.
With a little help from Google’s AJAX Search API, I was able to include everything I wanted, with a style that fits in perfectly with the rest of the page. So this ticker will be up there from now on. It’s the last item on the page to load, since it takes a few extra seconds to load. Click on an item whenever you want and it will open in a new tab.
Poor Liam was written by Jack McGlone for his brother Liam, who lives with Juvenile Arthritis. It’s a wonderful little book (I particularly enjoyed the drawings!) that will take you just a few minutes to go through, so be sure to take a look!
Don’t forget, July is Juvenile Arthritis Awareness Month.
Thanks to Michelle at ArthriticJoints.com for sharing this wonderful book that she found on the Arthritis Foundation website.
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- Health.com: 11 Famous People With RAOctober 1, 2014 - 9:50 am
- Arthritis Broadcast Network: Spotlight On Arthritis SuperheroesSeptember 10, 2014 - 7:34 pm
- The New York Times: Actress, Artist, Sometimes Both At OnceMay 20, 2014 - 10:29 am