June 29, 2009
Rheumatoid Arthritis Guy is pleased to present Flare. Have you ever found yourself in the middle of yet another flare and thought to yourself “How can I possibly have any fun?” Now you have the answer. Play Flare!
“In this hospital based survey, one in three patients with rheumatoid arthritis reported falling in the previous 12 months. Falls were associated with self reported impairment in lower limb function.”
Just yesterday, I was talking with someone about how my biggest challenge of living with rheumatoid arthritis no longer seems to be how to cope with the chronic pain, but has instead become how to manage the disabilities that this illness continues to introduce into my life.
It’s not that I’m ignoring my pain. I’m just becoming (I never thought I’d ever say this) used to it…and over the past few months, instead of focusing my thoughts and energies on trying to get rid of this pain, I’ve found myself returning to doing the things that I enjoy. My physical pain never does goes away, but for certain periods of time the mental awareness of my pain actually begins to fade away, as I happily cook away in the kitchen (careful with those sharp knives and heavy pots!) or swim 1000 meters non-stop (as I did this past Friday morning!).
Back to the disability aspect, however. Over this past month, I have (in no certain order) cut my finger, broken a glass, slammed my bad knee against the leg of my desk, dropped numerable items of food, spilled many drinks, accidentally dropped a bench press bar on my forehead (yes, it was as painful as it sounds), and (once again) fallen. This morning, as I walked up the three steps to my front door, I took a tumble.
This fall would have been much worse than it actually was, had I not broken my landing with my right hand. Yup, you’ve got it. One of the weakest joints in my body–my right wrist–took the full brunt of my entire body’s weight earlier today. But I ended up being okay. I anxiously waited for a major flareup during the following couple of hours, but it never arrived.
I have not yet been able to figure out how to prevent such accidents from taking place, but I have come up with a few steps that seem to help me when they do happen.
1. Don’t place blame on myself for my reduced coordination; this is just one more symptom of my RA.
2. Make a mental note of what just happened, and try to figure out things I can do to minimize a recurrence in the future.
3. Immediately confiscate any photos and/or video recordings of said accident, before they are posted on the Internet!
Here’s wishing everyone a happy and accident-free week!
Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!
Welcome to the fourth contest of our Arthritis Awareness Month celebration! This one’s our biggest – the prize is a $200 CVS gift certificate!
The short version of the rules is this: the contest is open to US residents over the age of 18. One entry per person, the contest is open until 11:59 PM EST Tuesday May 31, 2011.
To enter, answer the following question in 200 words or less: What have you learned through Arthritis Awareness Month that surprised you?
May 23, 2011 — Anti-citrullinated protein antibody (ACPA) is a better tool for classifying rheumatoid arthritis (RA) than rheumatoid factor (RF) levels are and should replace RF levels when the 2010 American College of Rheumatology/European Union League Against Rheumatism (ACR/EULAR) criteria for RA diagnosis are revised, a panel of European experts writes in the May issue of Arthritis & Rheumatism.
Read More: http://www.medscape.com/viewarticle/743199
[In order to view the entire article (and all other content on Medscape from WebMD), a one-time registration is needed, which is free of charge.]
I have not had a flare-up in either one of my hands for almost a week now.
There was period there when my hands were flaring up multiple times a day. There was no pattern to this disease activity (as least not that I could determine), and the onset of the inflammation in my hands and the tightening of the muscles in my forearms seemingly went from 0 to 10 in just a matter of seconds. One second, everything was fine…and just a few seconds later, my hands looked like pinball machine flippers. Others would try to gently stretch my hands back into shape, but the moment that any resistance was removed, my hands would…well, just flip back in place.
During this time of frequent flares in my hands, I became clumsier than ever. Funny thing though, is that when something would fall, I wouldn’t even get frustrated. I sort of expected the increase in accidents when I tried to use my hands (except, of course, when I actually cut part of my finger while chopping an onion). Sometimes, I would even preempt an accident that seemed all but unavoidable, and would ask someone else for help.
If the limp in my left leg and my many other ailments were not already making my rheumatoid arthritis obvious to those around me, the flare-ups in my hands just managed to shine the spotlight on my illness. I’m at the gym, lifting weights (using the smallest dumbbells, mind you) when my hands flare up. I’m sitting at my desk tutoring a student when my hands flare up (I do tell them casually, when this starts, that my hands will be out of commission for a while, but not to worry…oh, and could you please turn the page?)
But just as quickly as my hand flares appeared, they disappeared. I don’t know why. Maybe it’s because of the new wool gloves that I bought (I’m in winter right now). Maybe it’s because my hands (and my ankles) actually feel just a tad bit stronger after swimming 4x a week for a month now. Maybe it’s because, after years of being reminded by my rheumatologist, I am actually (gasp!) doing all of the recommended hand-strengthening exercises.
This past weekend, I got back into the kitchen…something that I am very wary to do when my hands are acting up. And while I did ask for help in peeling the potatoes and lifting anything that weighed more than a few pounds, I did do all of the chopping and mixing myself. The results were better than I could have imagined: wine-braised chuck tender roast, roasted garlic mashed potatoes, and yucca rosti with caramelized onions.
That same night, I also (finally) attended the white night activities in the city in which I live. This all-night arts festival is held in hundreds of cities around the world, usually in summertime. The organizers of this local event scheduled it to take place in what is normally summer in the northern hemisphere, but on what happens to be a very cold winter day here at 12,000 feet above sea level. During the past few years I had always planned on attending, but always cancelled the day of because it was too cold. This year, I piled on the layers while still managing to zip closed (two pairs of gloves were on my hands!) my huge down jacket, and went off into from museum to musical event to dance performance. It was a very nice finish to my day spent cooking in the kitchen.
The soles of my feet are starting to act up, as are both shoulders. My hands are much better than they’ve been for a while. I appreciate them so much more after all that they have been through during this past month. They continue to remain strong, and are once again supporting me (and making walking with a cane or crutches a little more easy).
I am happy, but I am also ready to adjust accordingly, should they once again come under attack from my rheumatoid arthritis.
Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!
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