RA Guy Is 1 Year Old

A year ago today, I launched Rheumatoid Arthritis Guy with the following post:

Rheumatoid Arthritis Guy Saves The World!
April 24, 2009

Okay, so maybe I didn’t save the world – yet. But I did launch this blog, and on a Friday afternoon no less. Now I can kick back and relax over the weekend. I’ll go back to saving the world on Monday.

The idea to start my own blog has been simmering around in my head for a while, but upon hearing for the third time in a month “Why don’t you start your own blog?” I finally decided to give it a go.  I put aside my self-paced iPhone application development training (and corresponding new MacBook Air – what a lovely thing) and jumped into the world of Adobe Illustrator (illustrations on the right) and WordPress (blog publishing software, for those who are not familiar).

I hope to have fun sharing adventures of my journey through chronic pain and debilitating inflammation.  My rheumatoid arthritis has undergone a major progression during the past few months, and I need to turn my daily routine of putting on and taking off my wrist guards and ankle protectors into something fun.  Hence, Rheumatoid Arthritis Guy and his tungsten wrist guards and titanium ankle protectors.

And yes, I really do still have a full head of hair.  Although two weeks ago I started taking Arava for my rheumatoid arthritis, and one of the most common side effects of this drug seems to be hair loss.  Here’s hoping that I don’t become follically challenged.  (Although I guess being able to comfortably lift a brush is more important than having a full head of hair – darn those wrists!)

So welcome to my world and welcome to my blog.  Don’t be shy – I would love to hear from you.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

What a year it has been! I no longer feel like I am the only person in the world living with rheumatoid arthritis. (Yes, I actually used to feel like that – for years.) I have learned that accepting chronic pain does not mean that I have to give up the things I love doing. I have stopped pushing myself to far, and have realized that by doing less I can actually do more.

I have gone from spending a most of my day in bed (depressed), to spending a majority of my time teaching, learning, socializing, reading, and moving around. (I started teaching my second class at the university where I recently started working, and a third class is coming up soon.)

My RA is still there and I am reminded of it each and every day…it no longer instills the sense of fear that it once did. I am managing it, and not letting it manage me.

To those readers who have followed my adventures since the beginning, thanks for all of the encouragement and support that you have provided along the way. For those readers who only recently stumbled across this blog, I’m glad you found us!

Oh, and if you’re wondering about my hair – I did lose quite a bit of it after being on Arava for a few months, but once we lowered the dosage everything grew back in.

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

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Sunday Break Birthday Edition

Because there is no such thing as taking too many breaks!

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37Today, April 18, is my birthday. How old am I turning? There’s a hint is on the left. A year ago my birthday faded somewhat into the background, as rheumatoid arthritis seemed to be the center of my universe. Not this year! The celebrations started on Thursday, and finally tapered down last night.

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But today, it’s actually back to work. Tomorrow I start teaching a second class at the university where I am currently working, and must finalize the syllabus and prepare my presentation for the first lecture. My current class has exams midterms this coming week, so needless to say it’s going to be a busy week!

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The dvd case was supposed to have Mel Brook’s History of the World, but instead has Woody Allen’s Love and Death. I had never even heard of this movie, but went ahead and popped it into the dvd player to see what is was all about. I loved it, and hadn’t laughed so much in a long time.

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Toblerone and Almond Joys. Yum.

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Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

19 Comments

Swins Ramblings

The random thoughts, musings and general shite floating around in the head of a self confessed geek and RA sufferer.

In the last 12 months though my life has taken a huge turn. Since been diagnosed with Rheumatoid Arthritis last summer, I’ve had to re-evaluate a number of things in my life. I’ve had to stop working at the moment, and as the focus of my life has now become getting this condition under control the career has had to take a back seat for a while. I am still trying to keep myself in the game, and try to keep abreast of new technologies etc. but the health situation is ruling the roost at the moment.

Read More: http://squirelly666.blogspot.com/

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Living It, Loving It: Humor Is A Must With Chronic Illness

The effect that chronic illness has on our lives, and the lives of those we love, is life altering to say the least. It can be confusing and you never know what to expect. The only thing that we ever learn is that the path we choose will influence the quality of our life and that we must be wise and prudent in order to survive. Part of the path we take involves understanding and learning about our illnesses. Another part involves lifestyle changes and accepting that those changes are imperative to having more good days than bad. Probably the most difficult and important part of our lives with chronic illness is the emotional rollercoaster and without balance and sensibility, we can never learn live to live with the challenges.

With our emotional rollercoaster, we learn that humor is a must.

Read More: http://ohboy-boys.blogspot.com/2010/04/humor-is-must-with-chronic-illness.html

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