FOR IMMEDIATE RELEASE
Rheumatoid Arthritis Guy To Be Inducted Into The Flare Hall Of Fame
Los Angeles, California (February 28, 2011) – The Worldwide Association of Flares announced today that Rheumatoid Arthritis Guy would be inducted into the Flare Hall of Fame during this year’s WAF show in Los Angeles. James Franco will host the event, which means that it will be almost, but not quite, as painful as an actual flare.
Rheumatoid Arthritis Guy has experienced many types of flares during the many years in which he has lived with Rheumatoid Arthritis. Some have lasted for a couple of hours, while others have lasted for a couple of months. While all of these flares have a lot in common, the truth to the matter is that two of them are never exactly alike. Flares are characterized by increased levels of disease activity (inflammation), resulting in extreme pain and limited-to-no mobility.
“Yesterday’s flare definitely stands out as one of my strongest ever,” RA Guy said earlier today, when he was told he would be an inductee into the Flare Hall of Fame. “It was in both legs, both hands, was creeping into my shoulders, and was tightening up my neck. Some of us use the phrase ‘drowning in pain’ figuratively, but yesterday it became all too real.” Rheumatoid Arthritis Guy was faced with a tough decision as the flare entered its toughest moments: he could either give in to the anxiety and fear and quite literally freak out, or he could take a deep breath, ask for company and talk his way through the worst minutes. We are pleased to report that he chose the latter.
Dealing with flares is never easy, but many individuals report that if approached correctly, each new flare can provide a little extra insight into how to deal with the next flare.
The Flare Hall of Fame was established to honor the noteworthy achievements of individuals living with various illnesses that result in flares. If you feel like you too are qualified to receive recognition in the Flare Hall of Fame, you are encouraged to share your story. For more information, please visit www.rheumatoidarthritisguy.com.
Rheumatoid Arthritis Guy
WHEN Kyrun Spraggs was eight years old and came home from school limping, his mum thought he had just injured himself during a game of football.
But when he started to lose weight and came out in a rash, she knew something was not right. After three weeks in hospital and numerous tests, Kyrun and his family were given shocking and unexpected news – he had arthritis.
‘We couldn’t believe it,’ says mum Kirstine Blake.
I was born just a year or two ahead of the real video game generation. The arrival of a Pong console at a friend’s house, when I was around five years ago, continues to be one of my earliest memories. My hand-held video games consisted of a printed screen on top of a small grid of red LED lights (hockey, basketball, football, etc.) A few years later, for Christmas, my brothers and sisters and I were given an Atari with about 20 games…it was the coolest thing ever! And then came Nintendo, and then came…well, most of us know how the story continued.
A couple of days ago I heard on a tech news podcast that the iPad is becoming the toy of choice for many young toddlers — it’s got video, it’s got music, it’s got games. The “perfect” gadget to babysit your kid for hours. I got to thinking about my childhood, and the toys that I used to play with before things went digital.
Barrel of Monkeys. Honestly, I still don’t understand this one…but I do remember playing with them for hours on end in my back yard, as I hung the monkeys from branches on a tree. I used to hand them one by one. I used to hang them in a chain. I used to wish for an endless amount of barrels of monkeys, so that I could make the longest chain of monkeys that ever existed.
Etch-A-Sketch. The best tablet device ever! The controls were simple: two white knobs. It never ran out of batteries. When you needed to reset it, all you had to do is turn it over and give it a good shake. I used to marvel at the reproductions of great works of art that some people were able to do on their etch-a-sketches, while being satisfied with being able to write my name in cursive script. (Did anyone ever figure out a good way to dot those i’s?)
Lite-Brite. Who couldn’t love the strange pixelated images made up of different colors of light? How many times did we have to subject family members to dark, curtain-drawn rooms during the day or pitch black (lights off) spaces during the night in order to see our work of art? There was one downside, though…once you punched the plastic pieces through the black piece of paper, your color indicator code was forever lost. I’ve still got a lite-brite somewhere in the closet of my home office, which I purchased only a few years ago.
Rubik’s Cube. The classic 3×3 version. I only ever figured out how to solve one face, but I still thought I was the most talented Rubik’s Cube player ever. (Except, of course, those young kids on television who could solve the entire cube in just a matter of minutes.) And then there was the screwdriver solution. Remove the pieces from the internal frame, reassemble them back into the correct order, and then try to get your mother or younger brother believe that you actually solved it!
Magic 8-Ball. ‘Nuff said.
Weebles. The wonderful, egg-shaped people whom no matter what, would not fall down. This only meant one thing, though: I had to figure out a way to knock them over and prevent them from returning to their full upright position. The closest I ever got was resorting to a non-flat surface, like the pillow on my bed. It’s interesting how you can tell little boys that these toys won’t fall down, and all these boys want to do is make the toys fall down. It was sort of like the inflatable punching clown that my cousin had that acted on the same principle…fill the base with sand, and it will always stand right back up.
Earlier this week, I realized that I was only 37 years old…and not 38, as I had been thinking for the past few months. (Not that specific numbers really matter that much anymore…it’s not like 13…or 18…or 21!) I’ve still got a little bit of kid inside of me, it seems.
Any yesterday, as RA kicked once again kicked my a** (a true walloping if ever there was one…sometimes, it’s best to not even put up a fight), I was surprised at how much better I was doing by the time evening rolled around. Sure, I had spent most of the day confined to my bed, with barely enough energy to stay away. I was definitely knocked over. But just like I’ve still got a little bit of kid inside of me, I think I’ve also got a little bittle of Weeble inside of me.
I will continue to wobble…but I’ll never fall down!
Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!
This month’s Student Voices topic: What would be the hardest thing for you to give up– texting, TV, or surfing the internet?
While snowflakes fall delicately outside of the window, my mom and I sit huddled close before the television, warmth blanketing both our bodies and our hearts. On nights like this, television is my best friend and the last thing in the world I would give up.
My mommy and I bond this way, laughing in perfect synchronization at Cosmo Kramer’s crazy shenanigans week after week. It allows both my mom and me to escape reality, if even for a half-hour.
Reading this brought a tear to my eye…just today I had to eat lunch in bed, with foldable tray and all.
Some injection devices for this biologic medicine are found defective, but many, maybe all, have not yet reached consumers.
2/22/11 Nearly 900 injectable pens containing the biologic drug Simponi are being recalled in the U.S. because a defect in the delivery device may prevent the administration of a full dose of the medication – a TNF-alpha inhibitor approved to treat rheumatoid arthritis, psoriatic arthritis and ankylosing spondylitis.
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- Arthritis Broadcast Network: Spotlight On Arthritis SuperheroesSeptember 10, 2014 - 7:34 pm
- The New York Times: Actress, Artist, Sometimes Both At OnceMay 20, 2014 - 10:29 am
- The Columbian: Arthritis Not stopping 20-Year-Old Nursing StudentApril 15, 2014 - 3:25 pm