Blog Spotlight: RheumaBlog

spotlightHi. I’m Wren.

“Rheuma” (ROY-ma) is the German word for rheumatoid arthritis. When I was diagnosed with the disease, I lived in Germany, so that’s what I got used to calling it. For me, it fits.

This blog is about rheuma and how it affects those of us who live with it every day. I’d like this to be a place where people who have it can talk to and support each other; a place where those who want to learn more can do so; and a place of quiet, warmth and peace, a haven away from the hustle-bustle of the world.

Be kind to yourself. Speak up. Remember you are your own best advocate.

Read More: http://rheumablog.wordpress.com/

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Rheumatoid Arthritis Guy Unplugged

UnpluggedYesterday was an encore performance of Rheumatoid Arthritis Guy Unplugged. No, I was not in a cozy little MTV studio, singing along as I played my acoustic guitar. (I was blessed with many talents, but music or voice talent are definitely not on that list!)

I’ve come to realize that about once a month (sometimes more, sometimes less) I have a day where I am completely unplugged – as in having absolutely no energy supply. It sometimes seems that I don’t even have enough energy to sleep. It sounds like an oxymoron, I know, but I have no doubt that those of us who live with chronic fatigue know this feeling all too well.

So from around 12 noon until 7 in the evening, with a few breaks here and there, I was out cold. Luckily my class yesterday was online, so my mega-nap didn’t interfere with any of my commitments.

The weather turned last night. It’s currently in the low 30′s, and a light drizzle has been falling for hours. Normally my living room would be flooded in sunlight at the moment, but with so many clouds in the sky everything has that “muted” feel.

In half an hour, I’m going into work. On top of my class, I have office hours in the morning. Here’s hoping that I won’t have another repeat performance of yesterday’s unplugged session. I think it’s time I start looking into winter batteries!

Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

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A Figment Of Fitness

My adventure through weight loss and newly diagnosed rheumatoid arthritis.

I guess it is time to take stock of who I am.  I don’t do that nearly often enough.

I am mommy to two (can they really be 18 and 15 already?  can DS really be going to graduate this year?).

I am an Oracle database administrator (actually… also an Apps DBA for those of you who know what that is) and an MBA

I am training for my first half marathon (Valentimes day 2010)

I am 40 something

I am the daughter of a breast cancer survivor.

I play farmville on facebook (awellsdba) because I grew up on a farm in a small town and I get homesick

I crochet

I take pictures

I have lost 30 pounds

I love Disney

I have been diagnosed with Rheumatoid Arthritis (December 2009). This means that I hurt and I get swollen and I will have an autoimmune disease for the rest of my life.  <this is where you stop and think and take stock of your life>

Read More: http://figmentoffitness.wordpress.com/

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RA|QA Rheumatoid Arthritis Questions & Answers

QuestionEric asks:
Hello everyone! I was wondering if I am a rare case or are there others out there like me? I was diagnosed in July 2008 and have had so many medications and have gone through two of the self injections and have just had my third infusion of Orencia and nothing seems to be working for me! Are there others out there like me? Why isn’t anything working? I am in so much pain and I know I am getting worse! I had to leave my job in December because it was just to much for me! Please someone just let me know that I am not imagining this pain. I feel alone!

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Sunday Break

Because there is no such thing as taking too many breaks!

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Sidekicks

Many of you have met them before, but these are my three sidekicks here around the house. Lily (left) is a 12 year old Cairn Terrier that I got during my last year of grad school. Alva (center) is a 7 year old Chihuahua/Terrier that I adopted from a dog rescue organization, an Oliver (right) is a 2 year old Pug – looking anxious just how pugs know how to do.

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For the first time in probably more than 1 year, I not only went to the market but I also spent all afternoon cooking in the kitchen. Cooking was one of my favorite hobbies before my rheumatoid arthritis worsened over the past couple of years, so it’s an extra-special treat to be able to return to some of my old habits. I’ve also traded open-air markets with the freshest produce imaginable for higher-priced grocery stores (and the convenience of their shopping carts), so being able to shop in the market and carry my groceries back home is another indicator of the recent spurt of wellness that I have been experiencing.

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In first (or third?) grade my class was treated to a showing of the video for Watership Down…I guess the fact that it was an animated movie led my teacher to believe that is was a movie for young kids. Wrong! The frightening visuals have stayed with me to this day, all the more reason to read the book and see if for the great work of fiction that it is. I’m currently mid-way through reading Watership Down, and am really enjoying it. (I plan to also see the video again afterwards.)

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As many people are beginning to experience the first warm days of spring, here in South America the chill of autumn has arrived. At 13,000+ feet above sea level, winters can be quite rough. Promise me that you all will send me warm thoughts in the coming months!

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Stay tuned…for the next adventure of Rheumatoid Arthritis Guy!

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