The month of July is juvenile arthritis awareness month in the United States.
Juvenile arthritis (JA) refers to any form of arthritis or arthritis-related condition that develops in children or teenagers who are less than 18 years of age. Approximately 294,000 children under the age of 18 are affected by pediatric arthritis and rheumatologic conditions.
For more information, visit the Arthritis Foundation’s Juvenile Arthritis Alliance.
Don’t Forget to Contact the FDA Today
JA Registry Needed Now!
We need your help!
The Arthritis Foundation has been advocating for many years for the creation of a juvenile arthritis registry. A JA registry would improve the care children with arthritis receive. It would help pediatric rheumatologists make better decisions about the type of medications our children need and it could serve as an early warning system if there are unintended side effects or outcomes of JA therapies. The Arthritis Foundation testified last month at the Food and Drug Administration (FDA) recommending that such a registry be established: http://www.arthritis.org/murphy.php
Now it is your chance to let the FDA know we want them to continue their commendable work in this area and make our dream a reality – the creation of a fully funded JA registry that would help our kids! Click here to learn more, take action and become an advocate!
Please personalize your letter with your individual story and feel free to include some or the entire letter which can be downloaded here. Please submit your comments either by regular mail or email by July 14th to:
Division of Dockets Management
(HFA-305), Food and Drug Administration
5630 Fishers Lane, rm. 1061
Rockville, MD 20852
Submit electronic comments to http://www.regulations.gov/fdmspublic/component/main?main=SubmitComment&o=09000064809306d1
All comments should be identified with: Docket No. FDA-2009-N-0145
I must admit that when I first heard of this proposed registry, I was a little reluctant to support it – based on privacy concerns. But I had done quite a bit of research on autoimmune illnesses as a whole during the past few weeks, and one of the things that stood out to me was researchers talking about the importance of such registries in their endeavors.