“Success isn’t about achieving something in the future,
but about doing something right now that you love.”
-Leo Babauta, zenhabits.com
10:00 am
Yesterday, I had one of my usual morning episodes of morning stiffness, which lasted until past midday. While the inflammation was present throughout my entire body, it seemed to be particularly focused on my ankles. On cold [...]
I’m feeling pretty good right now. Which if you has asked me 48 hour ago, this would have been the last thing that I would have thought I’d be saying right about now.
But I’ve had a really good day and a half…sure, my symptoms have shown a slight decrease during this short time period, but [...]
What a day. I woke up at 12 noon, but didn’t get out of bed until 3 pm. Absolutely everything hurt, including my chest (even breathing was painful). My neck felt like it was being pulled apart; I attribute this symptom to all of the stress that I had to have been experiencing during this [...]
Continue reading about Finding Comfort Within The Discomfort
My Bedside Table
Some fresh-cut roses from the garden, standing in a small glass pitcher. A daily strip of medicines from my weekly pill organizer, with an evening dose of Plaquenil visible in the front compartment. A trio of creams for my arthritic hands: Aspercreme, Peaceful Mountain Joint Rescue, and Bengay.
As I continue to encounter new [...]
Normally, I would right now be declaring that I am once again in a flare…but after a few months of being in this situation, I have started to realize that it’s no longer “just” a matter of being in or out of a flare. The entire baseline of my disease activity has dramatically shifted, and [...]
“Always do what you are afraid to do.” -Ralph Waldo Emerson
A few days ago, I called my rheumatologist. I had noticed some minor improvement in my pain and stiffness during the previous couple of weeks…not as much as I might have hoped for, but I continued to focus in on the fact that things continued [...]
Today has been an even rougher day than my past few days, if you can imagine that.
My left leg is seizing up every third step, and I’m unable to place it in anything resembling a normal position. I can barely get around, and when I do I’m completely out of breath. I’ve developed a severe [...]
I woke up crying today.
It used to be that I could alleviate some of the pain by staying still…but today, the exact opposite seems to hold true.
It hurts to sit down. It hurts to stand up. It hurts to lay down. Pressing my forearms down on a tabletop, placing all of my weight on my [...]
