July 4th, 2011

Warrior For JRA

Every 6 weeks Jordan, 9, has to have Remicade infusions for juvenile *autoimmune* arthritis & uveitis. She was diagnosed a month before she turned 3. ***There is no cure for these diseases.*** Remission is possible but highly unlikely for J. She has been on Enbrel & Humira but failed both. Current meds include Remicade, methotrexate [...]

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Who are we? I am Anna, a single mom with ADD and major depressive disorder, raising two kids in Texas. My son, Marty, has juvenile arthritis and ADHD. My daughter, Bella, is a healthy girl with a beautiful spirit and a gigantic heart.
Why are we here? I want to share our adventures [...]

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300,000 children are clinically diagnosed with Juvenile Arthritis in North America. Gavin is just one of them. He also has Uveitis (arthritis in the eyes) and Ulcerative Colitis.

Gavin’s Story! Living with Juvenile Arthritis…
Gavin was diagnosed with Juvenile Arthritis when he was 21 months old, Uveitis when he was 2 1/2 years old and Ulserative [...]

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A Nation Unaware: We Need To Increase Juvenile Arthritis Awareness
by Ashley Boynes
“She’s just a hypochondriac.”
“He’s lying.”
“It’s all in their head. They just want attention.”
“You’re faking!”
“Oh, you’re too young for arthritis.”
These are all phrases that children and teens with juvenile arthritis will, unfortunately, come across many times during the course of their lives and their [...]

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Wall Street Journal | Business | January 12, 2010, 12:00 A.M. ET
Lower Salaries, Reimbursement Rates Create Shortfall of Specialists; Kenneth’s Seven-Month Wait for an Appointment

A growing shortage of pediatricians trained in specialties such as neurology, gastroenterology, and developmental and behavioral medicine is threatening timely access to care for children, according to pediatric medical groups.
As the [...]

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January 5th, 2010

Upbeat About JRA

Upbeat about JRA is About me Living with JRA as a teenager and growing up and what I have learned.
Read More: http://upbeataboutra.blogspot.com/

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Now, as part of Arthritis Ireland’s Juvenile Arthritis Programme, adults who themselves have/had juvenile arthritis can provide children with arthritis and their families with valuable insight and support. Becoming a JA Mentor allows adults to pass on the benefit of their experiences with arthritis, increasing the confidence of children and their families by helping them [...]

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September 5th, 2009

Must-See JRA Blog

Warren Family – Baileys Blog “The Little Hero!”
Started as a blog Page to show Bailey and how shes doing with JIA – Juvenile Idiopathic Arthritis (known before as JRA – Juvenile Rheumatoid Arthritis) and Uveitis (In the Eyes from the Arthritis) You’ll see why She’s OUR Little Hero! – WELCOME!
Team to participate in Arthritis Walk [...]

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